Support a great cause and win an iPhone 3G!

State of Man & PolyPlat Records are seeking your help
in raising $14,000 for Hypophosphatasia Treatment for Jacob Conn.

Jacob Conn is literally part of the State of Man family
as he is a relative of Chris Love (State of Man Drummer).

THREE WAYS TO HELP: As you will see below, we have three ways you can help – 1. Donating $10 to get a digital Copy of the Songs for Jacob Digital Compilation CD,  2. Joining the online Street Team Mission to help spread the word while competing to win an iPhone 3G or $200 cash, and  3. Donating an amount other than $10 (whether in addition to or instead of the $10 Digital Compilation CD).  You’ll also find a letter from Jacob’s Mother at the bottom of this page!  Thank you  in advance for being part of this…

WAYS YOU CAN HELP:

  1. State%20of%20ManClick the banner below to donate $10 and receive the SONGS FOR JACOB Digital Compilation CD that includes music from generous friends of PolyPlat Records like Arrested Development, Corey Smith, Jayne Olderman CollectiveGary Pfaff & The Heartwells and Soup as well as tracks from State of Man!
  2. State%20of%20ManOnce you’ve donated, you can help even more by joining the viral online street team at http://www.reverbnation.com/stateofman and spreading the word to your friends and others via the Fund Raiser mission.  Not only will you help Jacob and his family but you could also win a new iPhone 3G (or $200 cash) just for getting the most people to help! Click the banner for details
  3. Want to give money in addition to the $10 above or perhaps you’d just like to give an amount other than $10.  Great!  Click here to donate now!LETTER FROM JACOB’S MOTHER
    Here are the details we received from his mother, Deanna Conn:

    I am contacting you guys to see if you can help Jacob, here is his story:

    He is a lively 2 ½ year old boy that was just recently diagnosed with Hypophosphatasia.

    Hypophosphatasiais a rare inherited metabolic disorder of decreased tissue nonspecific alkaline phosphatase and defective bone mineralization. The disease comes in one of five forms, perinatal, infantile, childhood, adult, and odonto hypophosphatasia. Depending on the severity of the skeletal disease, there may be deformity of the limbs and chest. Pneumonia can result if chest distortion is severe. Recurrent fractures can occur.Teeth may be lost prematurely, have wide pulp (inside) chambers, and thereby be predisposed to cavities. As yet, there is no cure for hypophosphatasia and no proven medical therapy. Some medications are being evaluated. Treatment is generally directed towards preventing or correcting the symptoms or complications.

    I have put in an application for the Shriner’s Hospital in St. Louis, MO for Jacob and we are awaiting approval. Dr. Michael Whyte, M.D. is the medical director of the Center for Metabolic Bone Disease and Molecular Research at Shriner’s Hospital-St. Louis was recently awarded for his furthering knowledge about metabolic bone diseases. The Center was established to bring together clinical and experimental scientists involved in the study of bone and mineral metabolism. The Center for Metabolic Bone Disease and Molecular Research founded in 1983investigates, treats, and diagnoses more than 100 rare bone diseases such as genetic forms of rickets, including hypophosphatasia and X-linked hypophosphatemia.

    The reason why I am contacting you is to ask if there is any help that you can provide for us financially; we would be forever grateful. We have a goal of $14,000 to cover all medical expenses, current and expected. We need funding for: all the expensive rare tests that were done before Jacob was diagnosed, travel expenses to/from the Shriner’s Hospital in St. Louis, financial support for any testing that the hospital doesn’t cover, dentures/partials for Jacob due to his missing teeth, funding for 6-8 visits per year will be needed with a specialized pediatric dentist and orthopedic doctor, hopefully finding a cure, and more unforeseen clinical expenses.

    We don’t know what the future holds for Jacob; or how painful this disease will be for him (only time will tell), but we are trying our best as parents to make his life as “normal” as possible.

    Will you guys please help us?

    State%20of%20ManQuantcast

    State%20of%20ManQuantcast

    Thanks for your donation!

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